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Raising Awareness

Our expert scientists and parent-led board are resources for the media, including CNN, Fox News, NBC’s TODAY Show, the Associated Press, USA Today, The New York Times and Parents Magazine.

Fight SMA // Shaping the Dialogue

Secretary of Health and Human Services

Donna Shalala

"The work of FightSMA enhances the effort of the many dedicated scientists of motor-neuron diseases. Your extraordinary fundraising and research partnership efforts on behalf of individuals with SMA exemplify the kind of citizen involvement that can play a significant role in efforts to eradicate the disease in the years ahead."

CNN with Wolf Blitzer

Howie Long, Friend and former Honorary Chairman of FightSMA

"For a disease of this magnitude, SMA is vastly underfunded. The research is right there-and it will have a ripple effect for countless other diseases."