The following is a look at what's going on this fall in Washington, D.C. that is related to Spinal Muscular Atrophy research.
Spinal Muscular Atrophy News
For Media Inquiries
June 28, 2017
FightSMA is excited to report that today Senators Roger Wicker (R-MI) and Sherrod Brown (D-OH) -- the lead Senate sponsors of the National Pediatric Research Network Act (NPRNA) -- are introducing legislation requiring the National Institutes of Health (NIH) to implement the law.
All SMA families have a story and their own individual struggles. We'd like to introduce you to the Kemps, a family that has gone from loss to hope, losing one daughter to SMA but having hope that a second SMA child will have a different life.