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Joe Slay

July 20, 2017

A Message of Appreciation from the FightSMA Board of Directors

Monday, June 26, 2017

It is with deep appreciation and deep affection for our many friends in the SMA community that the Board of Directors of FightSMA announces that FightSMA will this year be closing its doors.

Fixing a Protein is Saving Young Lives

A great article was recently published, charting life-changing work of Adrian Krainer, a professor and program chair of cancer and molecular biology at Cold Spring Harbor Laboratory in New York.  Krainer received seed money 15 years ago for his work to cure Spinal Muscular Atrophy.

Richmond Times-Dispatch: A Dream Comes True for Andrew and His Buddies

Thanks to the Richmond Times-Dispatch and columnist Bill Lohmann for the wonderful article published today about FightSMA's Joe and Martha Slay, and their role in searching for a cure for Spinal Muscular Atrophy.

President Obama Signs 21st Century Cures Act

The 21st Century Cures Act took a giant step toward implementation, as it was signed into law by President Barack Obama.  The signing marks the culmination of a three-year journey.

New #FightingWords Video Provides Advice for Parents Who Are Lobbying in Washington

The #FightingWords program provides advice for parents who are fighting against a child's disease, and are working so that others don't have to wage that same fight.

House Passes Updated 21st Century Cures Bill, Giving Boost to NPRNA

FightSMA is pleased to announce that the 21st Century Cures legislation approved by the U.S.