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Equipping Families

FightSMA equips and empowers families to fight back and find answers. With the collection of resources found here, families can begin their journey to understand SMA and what they can do to FIGHT BACK! Whether hosting a fundraiser or sharing with a student’s classroom, the FightSMA fact sheets and toolkit are valuable tools as families become champions in the effort to find a treatment and cure for SMA as soon as possible.

FightSMA Fact Sheet

Get the basic facts of SMA in an understandable way. A great tool for media, presentations, or fundraisers.

If you or a loved one has recently received an SMA diagnosis, we would like to hear from you to answer questions and offer any direction we can by email or phone.  A neurologist with many years of treating SMA patients will answer your questions individually and with care.