Deanna Griffin

Treasurer, FightSMA

Serving as Treasurer of FightSMA since late 2015, Deanna Griffin is an enthusiastic volunteer. She has put her training as an accountant to work for numerous nonprofit organizations, including serving as president of the PTO (Parent Teacher Organization) in the community of Barrington, Illinois, near Chicago. Either she or her husband Terry have served on the FightSMA board since 1997. The have two children: Kevin and Courtney who was diagnosed with SMA Type 3. After graduating from Loyola University Chicago in 2015, Courtney began work at Spark, a Chicago media-buying group. Kevin is a third-year law student at Loyola University Chicago. Says Deanna of her two decades-plus experience with SMA:  “Life is not conventional, and it never will be. But it can be great. It can all be done.”